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Matthew has a mild form of spina bifida; his bladder does not work properly which causes reflux to his kidneys. He also has slight muscle wastage in his legs and has suffered kidney failure.
Our main concern was protecting Matthew’s kidneys and we were told catheterisation would help. At first, we wondered how Matthew would adapt to the procedure and as parents our main concern was would we be able to do it. His father was very worried as he was relating the procedure to himself and felt it would be awful.
Our local Continence Advisor introduced ISC to us using a LoFric catheter. Matthew adapted to ISC immediately and our only concern now is he leaves going to the toilet to the very last minute. He gets bored whilst the procedure is taking place and pulls things off shelves or squeezes our noses and pats our heads.
As he is only four it will be a while before he can catheterise himself. We find the procedure easy at home because everything is to hand, doing it away from home is a little more difficult. We prepare a bag with all the things we will need, our main concern is trying to be discreet which will get more difficult as Matthew gets older.
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